Transplantation Resources

Patient Support Organizations
Donors and Donor Families
Directories
Governmental Information & Clearinghouses
Regional Resources
Specific Types of Transplantation

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Transplant Patient Support Organizations

• Surviving Transplantation
  Fulltext of "Surviving Transplantation: A Personal Guide for Organ Transplant Patients, Their Families, Friends and Caregivers By John Craven MD and Susan Farrow OT"

• National Transplant Assistance Fund
  "educational information, fund-raising expertise for patients raising money for transplants, and financial support to patients through medical assistance grants"

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Information for Donors and Donor Families

• Coalition on Donation
  "founded in 1992 to educate the public about organ and tissue donation, correct misconceptions about donation, and create a greater willingness to donate."

• LIFENET
  "full-service, non-profit allograft Tissue Banking,... also a non-profit, federally-designated, Organ Procurement Organization (OPO) providing donation systems for heart, liver, kidney, pancreas, lung, and other organs for transplant."

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Major Directories of Transplant Related Websites

• TransWeb
  A project of the University of Michigan Medical Center. Includes extensive directory of transplant centers with websites (see "Transplantation Resources on the Internet" section.)

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Governmental Information and Clearinghouses

• United Network for Organ Sharing
  "national center and clearinghouse for information regarding organ and tissue donation, and transplantation,... serves as the repository for informational resources."
• UNOS Transplant Patient Datasource
  Provides statistics by state, region, and transplant center.

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Regional Transplantation Resources

• University of Nebraska/Nebraska Medical Center Transplant Services
  The UNMC/Nebraska Medical Center Transplant Programs include: bone marrow transplants, liver transplants, intestine transplants, kidney transplants, pancreas transplants, heart transplants, the Lied Transplant Center, and Organ Recovery Services.

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Specific Types of Transplantation

• National Kidney Foundation
  Information for patients and caregivers, healthcare providers, and donors

• National Marrow Donor Program
  "maintains a computerized Registry of volunteer donors"; information for donors and patients

Consumer Health Disclaimer:

This information is intended to provide general information for you. Some material may contain information that is the opinion of the author and not necessarily that of your physician. Only a health professional (physician, nurse, etc.) can interpret and individualize the information for a specific person's condition and situation. Please consult your health professional on specific medical questions.