Patient registries have been developed to identify individuals who would be interested in participating in research studies related to a specific disease or as a normal control, or in some cases to collect data that can be later studied to identify what might be causes of certain diseases, or what factors make them progress faster.
UNMC associated Registries are listed below. If you are a patient or family member interested in donating or participating in a registry contact the coordinator listed below. For assistance in locating a registry not listed here contact the Research Subject Advocate's office at 402-559-6941 or email
| Registries & Biobanks | Contact Information |
|
Cancer (iCaRe2) included in iCaRe2 BCCR Breast Cancer Collaborative Registry |
Michelle Desler, MS
|
| Normal Control Registry [Great Plains Health Informatics Database (GPHD)] |
Michelle Desler, MS 402-559-8885 |
| Cystic Fibrosis Registry | Jill Fliege, MS, APRN 402-559-9101 |
| The Nebraska Biobank Deidentified serum, plasma, and DNA samples |
Yuning Zhang, PhD, BMI Navigator
|
| Diabetes, Obesity, and Complications (DOCR) Registry | Ana Laura Morales 402-559-6277 |
| Internal Medicine Biobanks | Contact Person(s) |
| Nebraska Parkinson's Disease Registry | Jill Krause NE Department of Health and Human Services 402-471-8582 |
| Paraffin Tissue Bank de-identified formalin fixed, paraffin embedded human tissues with a variety of neoplastic & non-neoplastic diseases paired with normal samples. |
Geoffrey Talmon, MD, Director Theresa Faure, MBA, PTB Project Manager Melissa Hozapfel, BS, Tissue Sciences Facilities Supervisor Salma Elhag, BSc, PTB Technologist 402-559-4123 |
| RAIN Rheumatoid Arthritis Investigational Network |
James O'Dell, MD, Director RAIN Database PI: Kaleb Michaud, PhD 402-559-7239 |
| Rheumatoid Arthritis, Osteoarthritis, Lupus and other Rheumatic Diseases Registry | Kaleb Michaud, PhD 402-559-7239 |
| Tissue Procurement Shared Resource | Benjamin Swanson, MD, PhD 402-559-7637 |