{"id":3421,"date":"2023-05-02T07:03:17","date_gmt":"2023-05-02T12:03:17","guid":{"rendered":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/?p=3421"},"modified":"2023-05-02T07:03:20","modified_gmt":"2023-05-02T12:03:20","slug":"patients-living-with-long-covid-offer-insight-to-fda","status":"publish","type":"post","link":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/2023\/05\/02\/patients-living-with-long-covid-offer-insight-to-fda\/","title":{"rendered":"Patients Living With Long COVID Offer Insight to FDA"},"content":{"rendered":"<div class=\"panel body-content\"><div class=\"panel__container\">\n<p><a href=\"https:\/\/www.medpagetoday.com\/infectiousdisease\/longcovid\/104250?xid=nl_mpt_morningbreak2023-05-01&amp;eun=g1462072d0r&amp;utm_source=Sailthru&amp;utm_medium=email&amp;utm_campaign=MorningBreak_050123&amp;utm_term=NL_Gen_Int_Daily_News_Update_active\">MedPageToday<\/a><\/p>\n\n\n\n<p>Patients with long COVID and their caregivers shared how the illness has impacted their lives, the treatments they&#8217;ve tried, and their hopes for clinical trials during a&nbsp;<a href=\"https:\/\/www.fda.gov\/drugs\/news-events-human-drugs\/public-meeting-patient-focused-drug-development-long-covid-04252023#event-information\" target=\"_blank\" rel=\"noreferrer noopener\">virtual public meetingopens in a new tab or window<\/a>&nbsp;on Patient-Focused Drug Development for Long COVID hosted by the FDA on Tuesday.<\/p>\n\n\n\n<p><strong>Impacts on Daily Living<\/strong><\/p>\n\n\n\n<p>Jill Anderson, a patient participant, works for a behavioral health community services board in Virginia. Before developing long COVID, she had never had vertigo. Today, she&#8217;s dizzy all the time.<\/p>\n\n\n\n<p>&#8220;I would get up in the middle of the night and take a step out of bed and fall to the floor. It was terrifying how my world was spinning and out of balance,&#8221; she said.<\/p>\n\n\n\n<p>She has also experienced significant &#8220;brain fog,&#8221; fatigue, and loss of appetite. Anderson currently works remotely on a reduced schedule and is worried she might lose her job.<\/p>\n\n\n\n<p><a href=\"https:\/\/www.medpagetoday.com\/infectiousdisease\/longcovid\/104250?xid=nl_mpt_morningbreak2023-05-01&amp;eun=g1462072d0r&amp;utm_source=Sailthru&amp;utm_medium=email&amp;utm_campaign=MorningBreak_050123&amp;utm_term=NL_Gen_Int_Daily_News_Update_active\">Continue reading<\/a><\/p>\n<\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>MedPageToday Patients with long COVID and their caregivers shared how the illness has impacted their lives, the treatments they&#8217;ve tried, and their hopes for clinical trials during a&nbsp;virtual public meetingopens in a new tab or window&nbsp;on Patient-Focused Drug Development for Long COVID hosted by the FDA on Tuesday. Impacts on Daily Living Jill Anderson, a [&hellip;]<\/p>\n","protected":false},"author":11,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":false,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[11,34],"tags":[],"class_list":["post-3421","post","type-post","status-publish","format-standard","hentry","category-covid","category-long-covid"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/posts\/3421","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/comments?post=3421"}],"version-history":[{"count":1,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/posts\/3421\/revisions"}],"predecessor-version":[{"id":3422,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/posts\/3421\/revisions\/3422"}],"wp:attachment":[{"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/media?parent=3421"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/categories?post=3421"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.unmc.edu\/healthsecurity\/transmission\/wp-json\/wp\/v2\/tags?post=3421"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}