UNMC & UCSF Dementia Care Ecosystem

Ecosystem

Summary

Who is Eligible for This Study?

For Patient Participation

For Caregiver Participation

Overview

The University of Nebraska Medical Center and the University of California San Francisco are partnering with patients and their caregivers to better understand and manage dementia with a new, telephone and web-based model of care. This project is funded by a 3-year, $10 million Healthcare Innovations Award from the Centers for Medicare & Medicaid. The impact of the Care Ecosystem will be studied, as it aims to support patients and their caregivers with decision-making, medications, caregiver support, online education, and, for a subset of patients, remote monitoring with smartphones, watches, and home sensors. 

What's Involved?

For all enrolled patients and caregivers, we will first conduct telephone surveys on their experience with dementia and dementia care. Two-thirds of participants will then be randomly selected to participate in Navigated Care. For these people, Care Team Navigators (CTNs) will provide support through an innovative dashboard that will drive personalized and coordinated care. The CTNs will be backed by a Navigated Care Team, made up of social workers, nurses and pharmacists with dementia expertise. This team will help caregivers cope with and plan for the many challenges that face adults managing dementia.

Goals of the Intervention

Care Ecosystem aims to assist caregivers with the following:

The Care Ecosystem study is supported by Grant Number 1C1CMS331346 from the U.S. Department of Health and Human Services, Centers for Medicare & Medicaid Services to help improve dementia care for patients and their caregivers. The content of this webpage is solely the responsibility of the authors and does not necessarily represent the official views of the U.S. Department of Health and Human Services or any of its agencies.
UNMC IRB Protocol #: 483-14-EP