UNIVERSITY OF NEBRASKA OMAHABiobanks/Registries
List of Biobanks and registries
|
Name |
PI / Director / Manager |
|
A 5-Year Prospective Observational Registry to Assess Adverse Events of Interest and Effectiveness in Adults with Active, Autoantibody-Positive Systemic Lupus Erythematosus Treated with or without Benlysta (belimumab) |
Medlin Jennifer Lynn, MD |
|
A Global, Multi-Center, Long-Term, Observational Survey of Patients with Hunter Syndrome (Mucopolysaccharidosis II) |
Rizzo William Bradley, MD |
|
A Research Database for Hematopoietic Cell Transplantation, Other Cellular Therapies and Marrow Toxic Injuries |
Warkentin Phyllis Irene, MD |
|
Adult Oncology/Hematology Data Collection Study |
Ganti Apar K, MD |
|
American College of Cardiology Foundation Left Atrial Appendage Occlusion Registry (LAOO) |
Delaney, Jessica T |
|
Autism Learning Health Network |
Burnette, Courtney P |
|
BEST-Registry |
Longo Gernon Matthew, MD |
|
Catheter Ablation of Atrial Fibrillation at UNMC |
Tsai Shane F, MD |
|
Clinical Research Analytics Environment (CRANE)(formerly OneTeam Enterprise Data Warehouse and Analysis System) |
Mcclay James C, MD |
|
Congenital Registry for Interventional and Diagnostic Study Procedures: The "CRISP" Quality Assurance Effort |
Delaney Jeffrey William, MD |
|
Critical Care EEG Monitoring Research Consortium |
Taraschenko Olga, MD., PhD |
|
Cystic Fibrosis Patient Registry |
Thomas Heather Michelle, MD |
|
Cystic Fibrosis Patient Registry (Adult) |
Murphy, P. James James |
|
DEM Recruitment Registry |
Desouza Cyrus Victor, MBBS |
|
Dermatology Patient Data Registry |
Jennifer Adams, MD |
|
Donors After Circulatory Determined Death Registry |
Urban Marian, MD |
|
Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort |
Hellman Amy Michele, MD |
|
Establishment of the Pediatric Obesity Weight Evaluation Registry (POWER): A prospective pilot project of children and adolescents presenting for weight management |
Quiros Ruben E, MD |
|
Fatty Liver Disease Research Registry |
Manatsathit Wuttiporn, MD |
|
Functional Luminal Imaging Probe and Eosinophilic Esophagitis |
Hewlett Alexander Todd, DO |
|
Genitourinary Tract Infections Registry |
Lagrange Chad Allen, MD |
|
Global Registry for Endovascular Aortic Treatment Outcomes Evaluation |
Longo Gernon Matthew, MD |
|
GLORIA-AF: Global Registry on Long-Term Oral Anti-thrombotic TReatment In PAtients with Atrial fibrillation (Phase III) |
Anderson Daniel Roy, MD., PhD |
|
GP IDeA CTR Alzheimers Disease Registry |
Rizzo Matthew, MD |
|
Great Plains Regional Registry |
Rizzo Matthew, MD |
|
Growth and Retinopathy of Prematurity Registry |
Suh, Donny W |
|
Home Instead Center for Successful Aging (HICSA) Cancer Care Clinic (CCC) Registry |
Koll Thuy Thi, MD |
|
ICD Registry |
Erickson Christopher Carl, MD |
|
IMPACT Registry (IM proving P ediatric and A dult C ongenital T reatment) |
Delaney Jeffrey William, MD |
|
Improving Renal Outcomes Collaborative (IROC) to Improve Health, Longevity and Quality of Life for Children with Kidney Disease |
Taylor Veronica A, MD |
|
INTERAGENCY REGISTRY OF MECHANICALLY ASSISTED CIRCULATORY SUPPORTSponsor: National Heart, Lung, Blood InstituteContract # HHSN268201100025C |
Um John Y, MD |
|
International Intestinal Failure Registry Study |
Mercer David Frederick, MD., PhD |
|
Intestinal Rehabilitation Program Registry at UNMC |
Rochling Fedja A, MBBCh |
|
Know Falls Research Data Registry |
Skinner Anne Marie, MS |
|
MAP-IT REDCap |
Erickson Christopher Carl, MD |
|
Mind and Brain Health Registry |
Warren David E, PhD |
|
Montalcino Aortic Consortium: Precision Medicine for Heritable Thoracic Aortic Disease |
Yetman Angela T, MD |
|
National COVID Cohort Collaborative (N3C): A national resource for shared analytics |
Mcclay James C, MD |
|
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children with Complex Congenital Heart Disease |
Curzon Christopher L, DO |
|
Nebraska Biobank Registry |
Gud Purnima, PhD |
|
Nebraska Cancer Analytics Resource System (NE CARES) |
Campbell Walter Scott, PhD |
|
Nebraska Pediatric Research Registry |
Mcculloh Russell J, MD |
|
NeMeRe, a Multi-Institutional Retrospective and Prospective Registry of Neoplastic Meningitis in Adults |
Shonka Nicole Annette, MD |
|
Neonatal Encephalopathy Registry |
Peeples Eric Stanley, MD |
|
Orthopaedic Registry to Monitor Treatment Outcomes |
Garvin Kevin Lloyd, MD |
|
Pancreatic Ductal Adenocarcinoma at the University of Nebraska between 1/1/2014 and 1/1/2019 |
Yanala Ujwal Reddy, MBBS |
|
Pediatric and Congenital Heart Disease Imaging Data Registry |
Christensen Jason Tyler, MD |
|
Pediatric Cataract Surgery Outcomes Registry |
Fouzdar Jain Samiksha, MBBS |
|
Pediatric Craniofacial Surgery Perioperative Registry (PCSPR) of the Pediatric Craniofacial Collaborative Group |
Franzen Marcellene H, MD |
|
Pediatric Heart Transplant Study Group |
Ballweg Jean A, MD |
|
Pediatric Interagency Registry for Mechanically Assisted Circulatory Support (Pedimacs) |
Ballweg Jean A, MD |
|
Pediatric: Osteogenesis Imperfecta (OI) / Metabolic Bone Data Registry |
Wallace Maegen Jean, MD |
|
Potts Shunt Data Repository |
Anderson, Venus |
|
Prospective registry of efficacy and safety of non-vitamin K antagonist oral anticoagulants for thromboembolic prevention in patients with congenital heart disease (NOTE Registry Protocol) |
Tsai Shane F, MD |
|
Pulmonary Arterial Hypertension Registry |
Wichman Tammy O, MD |
|
Pulmonary Hypertension Association Registry (PHAR) |
Wichman Tammy O, MD |
|
Quality Improvement and Practice Based Research in Neurology Using the EMR |
Murman Daniel Lynn, MD |
|
Registry for Patients with Pulmonary Arterial Hypertension at UNMC |
Zolty Ronald, PhD |
|
Registry for Surgical Cytoreduction Combined with Hyperthermic Intraperitoneal Chemotherapy (CRS/HIPEC) in the Treatment of Patients with Peritoneal Metastasis |
Foster Jason M, MD |
|
Registry of Autoimmune Lung disEaseS (RALES) |
England Bryant Robert, MD |
|
Registry of ECMO Anticoagulation in Pediatrics (REAP) |
Norton Bridget M, MD |
|
Retrospective Study to Collect Follow-Up Data at 12 Months Among Transplant Recipients with Refractory or Resistant Cytomegalovirus Infections Randomized to the Maribavir Treatment Arm in the SHP620-303 Open-label Phase III Trial |
Florescu Diana Florentina, MD |
|
Riociguat Users Registry - The ROAR registry |
Zolty Ronald, PhD |
|
RISE Registry Protocol |
Michaud Kaleb D, PhD kmichaud@unmc.edu |
|
SCOPE Collaborative (Standardized Care to improve Outcomes in Pediatric ESRD) |
Muff-Luett Melissa A, MD |
|
The American Thrombosis and Hemostasis Network (ATHN) |
Harper James Lloyd, MD |
|
The Management of Acromegaly (MACRO) Registry |
Drincic Andjela Tugomir, MD |
|
The North American Pediatric Renal Trials and Collaborative Studies (NAPRTCS) |
Lovell Helen Bergado, MD |
|
The Society of Thoracic Surgeons and American College of Cardiology Foundations Transcutaneous Valve Therapy (TVT) Registry |
Moulton Michael J, MD |
|
TOPP-2 registry- Tracking Outcomes and Practice in Pediatric Pulmonary Hypertension |
Sammut Paul Henry, MD |
|
UNMC Heart Failure and Cardiac Transplant Registry |
Lowes Brian D, MD |
|
Uptravi® (SelexiPag): tHe usErs dRug rEgistry (SPHERE) |
Wichman Tammy O, MD |
|
Using Patient Data to Transform Care and Improve Outcomes for Children, Adolescents, and Young Adults with Inflammatory Bowel Disease |
Kusek Mark Edward, MD |
|
Valve-in-Valve International Data (VIVID) Registry |
Goldsweig Andrew Michael, MD |