Agenda

Friday, March 13

5:30 p.m. | Blackstone Foyer
Registration / Networking Reception / Exhibits

6:30 p.m. | Blackstone A and B
Dinner 

7:00 p.m. | Blackstone A and B
Welcome and Overview
Jill Fliege, MS, APRN-NP – Nurse Practitioner and Program Coordinator, Adult Cystic Fibrosis Program, Nebraska Medicine

Alexandra (Ali) Love, BSN, RN, CPN – Cystic Fibrosis Program Coordinator, Children’s Nebraska

Heather Thomas, MD – Associate Professor, Division of Pulmonology and Sleep Medicine, Department of Pediatrics, UNMC; Pediatric CF Program Director, Children's Nebraska

7:15 p.m. | Blackstone A and B
Patient/Family Artwork Spotlight and Raffle
Plenary Session: Mother/Daughter Duo – A Cystic Fibrosis (CF) Life
Emily Bonnell – Patient, Chicago, IL
Laura Bonnell – Patient (Family), Royal Oak, MI

8:15 p.m.
Adjourn

Saturday, March 14

7:30 a.m. | Blackstone Foyer
Registration / Breakfast Buffet / Exhibits

8:30 a.m. | Blackstone A and B
Welcome and Overview
Jill Fliege, MS, APRN-NP – Nurse Practitioner and Program Coordinator, Adult Cystic Fibrosis Program, Nebraska Medicine

Alexandra (Ali) Love, BSN, RN, CPN – Cystic Fibrosis Program Coordinator, Children’s Nebraska

Peter (Jim) Murphy, MD – Associate Professor, Division of Pulmonary, Critical Care & Sleep Medicine, Department of Internal Medicine, UNMC; Adult CF Program Director, UNMC/Nebraska Medicine

8:45 a.m. | Blackstone A and B
Patient/Family Artwork Spotlight and Raffle
Plenary Session: From Pediatrics to Adult Care – Navigating Diabetes Across the CF Lifespan
Marie Couldwell, MD – Associate Professor, Department of Endocrinology, Metabolism and Diabetes, University of Utah School of Medicine, Salt Lake City, UT
Katie Kaput, DO – Endocrinologist, Endocrinology and Metabolism, Sugar House Health Center, Salt Lake City, UT

10:00 a.m. | Blackstone Foyer
Break / Exhibits (Beverages and Snacks Provided) 

10:30 a.m. – BREAKOUT SESSION 1

• Breakout A | Prague Room
  Alyftrek / Vanzacaftor-Tezacaftor-Deutivacaftor in Practice – Clinical Data, Real-World Outcomes, and Access Trends
  Stephanie Duehlmeyer, PharmD, BCPPS, AE-C – Clinical Pharmacy Specialist, Pulmonary Medicine, Children’s Mercy Hospital, Kansas City, MO
  Lindsey Fitzpatrick, PharmD, BCPS – Ambulatory Clinical Pharmacist, University of Kansas Health System, Kansas City, MO
  
• Breakout B | Murray Room
  Screening and Beyond – The Role of Physical Therapy in Comprehensive CF Management
  Andrew Clendenen, PT, DPT – Physical Therapist, Nebraska Medicine, Omaha, NE
  Samantha Rasmussen, PT, DPT – Physical Therapist, Children's Nebraska, Omaha, NE
• Breakout C | Herndon Room
  Recent Advances in Gene Therapy for Cystic Fibrosis
  Ashley Cooney, PhD – Research Assistant, Professor of Pediatrics – Pulmonary Medicine, Carver College of Medicine, The University of Iowa, Iowa City, IA
• Breakout D | Merchants Room
  Advocating for High-Quality Care for CF in the Midwest
  Leslie Powell, MPA – Senior Director of Public Policy, Cystic Fibrosis Foundation, Washington, DC
• Breakout E | Cozzens Room
  Why Weight? Reasons to Consider a Paradigm Shift to Weight-Inclusive Care
  Kristine Kittridge, MS, RD, LD, CNSC – Clinical Dietitian Supervisor, Maine Medical Center, Portland, ME

11:20 a.m. | Blackstone Foyer
Break 

11:30 a.m. | Blackstone A and B
LUNCH & LEARN: DISCIPLINE-SPECIFIC BREAKOUTS

• Table A: Physical Therapists/Respiratory Therapists
  Moderator: TBD
• Table B: Social Workers/Mental Health Practitioners
  Moderator: TBD
• Table C: Registered Nurses
  Moderator: TBD
• Table D: Pharmacists
  Moderator: TBD
• Table E: Dietitians
  Moderator: TBD
• Table F: Providers
  Moderator: TBD
• Table G: Research Coordinators
  Moderator: TBD

12:30 p.m. | Blackstone Foyer
Break 

12:50 p.m. – BREAKOUT SESSION 2

• Breakout A | Prague Room
  Navigating Off-Label CFTR Modulator Through Patient Case Scenarios
  Tara Blesh-Boren, PharmD – Clinical Pharmacist, Children’s Nebraska, Omaha, NE
  Greg Gui, PharmD – Pharmacist, Adult Cystic Fibrosis Center and Specialty Pharmacy, Nebraska Medicine, Omaha, NE
• Breakout B | Murray Room
  Gastrointestinal Issues in Persons with Cystic Fibrosis (PwCF)
  Sirish Kumar Palle, MD, CFF DIGEST – Associate Professor in Pediatrics, Department of Pediatric Gastroenterology, Hepatology and Nutrition, Oklahoma University Health Sciences Center, Oklahoma City, OK
• Breakout C | Herndon Room
  The Life of a Respiratory Therapist – Still in our Airway Clearance Era
  Marci Mulloy, AE-C, RRT – Respiratory Therapist, Children’s Mercy Hospital, Kansas City, MO
• Breakout D | Merchants Room
  Suicide Management
  David Cates, PhD – Clinical Psychologist, Department of Psychiatry, University of Nebraska Medical Center, Omaha, NE
• Breakout E | Cozzens Room
  CF or Not CF? That Is the Question (And Always Has Been)
  Christopher Oermann, MD – Director, Cystic Fibrosis Center, Children’s Mercy Hospital; Professor of Pediatrics, School of Medicine, University of Missouri-Kansas City; Clinical Professor of Pediatrics, School of Medicine, University of Kansas Medical Center, Kansas City, MO

1:40 p.m. | Blackstone Foyer
Break (Beverages and Snacks Provided)

2:00 p.m. | Blackstone A and B
Patient/Family Artwork Spotlight and Raffle
Plenary Session: Sexual Health and Reproduction
Jennifer L. Taylor, MD, MSCS, ATSF – Professor, Adult and Pediatric Pulmonary Medicine, National Jewish Health, Denver, CO

3:15 p.m. | Blackstone A and B
Wrap Up

3:30 p.m.
Adjourn