CHRI Conference Attendee Information

Program Agenda

Friday, November 8

The doors at the Scott Conference Center (SCC) will open at 7:00 am, and a breakfast buffet will be provided. Program starts at 8:00 am. 

Parking and Directions

Lot 9 is exclusively used for SCC guests and provided at no cost. It is located across the street from the SCC main entrance on Pine Street.

Directions from I-80: Take exit 449 for 72nd Street North, Continue down 72nd Street, Take a right on Pine Street, SCC is located at 6450 Pine Street

Directions from Dodge Street: Turn South off Dodge Street, Take a left on Pine Street, SCC is located at 6450 Pine Street

More information about the Scott Conference Center.

Schedule

7 - 8 a.m.
Poster session & Breakfast 

8 - 8:30 a.m.
Welcome: Ann Anderson Berry, MD, PhD, CHRI Executive Director

8:30 - 11:30 a.m.
Invited Talks and Abstract Award Winners : 

William Rizzo, MD, Professor, UNMC Division of Inherited Metabolic Diseases

"From fat to feathers: A strange journey in rare disease research"

Arwa K. Nasir, MBBS, Professor, UNMC Division of General Pediatrics

"Global trends in autism diagnosis and management"

Paul Trippier, PhD, Professor, UNMC Department of Pharmaceutical Sciences

"Drug Discovery for CLN3 Disease: Tales from the pediatric drug development core"

11:30 a.m. - 12:00 p.m.
Lunch

12 - 1 p.m.
Keynote/Grand: Marius George Linguraru, DPhil, MA, MSc, the Connor Family Professor and Endowed Chair in Research and Innovation at Children’s National Hospital in Washington, D.C. 

"Ethical AI for Children's Health and Rare Diseases."

1:15 – 1:45 p.m.
CHRI State of the State

1:45 – 2 p.m.
Break 

2 – 3:30 p.m.
Breakout Rooms

3:30 – 4:30 p.m.
Poster Session & Featured Resources

4:30 – 5:30 p.m.
Social Hour