2019 IRB Conference Agenda

Friday, August 23, 2019 - 7:30am to 4:30pm

7:30 – 8:30 am

Continental Breakfast and Check In

8:30 – 8:45 am


Bruce Gordon, MD

8:45 – 10:15 am

From Human Subjects to Data Subjects: Exploring the Landscape of Internet Research, Social Media, and Big Data

Elizabeth Buchanan, PhD

10:15 – 10:30 am


10:30 – 12:00 pm

Values Validation: Reflections on Research Ethics in Academia, Government, and Industry Environments

Toby Schonfeld, PhD

12:00 – 1:00 pm


1:00 – 2:00 pm

Ethics of Incentivizing Research

Nick Markin, MD

2:00 – 2:15 pm


2:15 – 3:15 pm

IRB Education: Novel Approaches and Best Practices

Sara Frizzell, MS, CCRP, University of Nebraska-Lincoln

Mary Hindle, CCRP, Kansas University Medical Center

Kelly O’Berry, CCRP, University of Iowa

Abbey Lowe, MA, University of Nebraska Medical Center

3:15 – 4:00 pm

What is a METRIC? 

Rachel Wenzl, MPH, CIP

Jenn Klein, BA

4:00 – 4:15 pm

Final Questions & Closing Remarks

Bruce Gordon, MD

Agendas from past conferences can be found here.


Elizabeth A. Buchanan, PhD 

Elizabeth Buchanan

Elizabeth A. Buchanan, PhD is Endowed Chair in Ethics and Acting Director, Office of Research and Sponsored Programs at the University of Wisconsin-Stout. Her research is focused on the intersections of emerging technologies, ethics, and IRB review. Her latest publications include a commentary on big data in PLOSONE, a chapter on Internet research methods in the Sage Handbook of Qualitative Research Methods, and an update to Internet Research Ethics in the Stanford Encyclopedia of Philosophy.

Elizabeth is active in Public Responsibility in Medicine and Research, serving on the faculty roster since 2008 and serving on the Conference Planning Committee since 2012. She was the Conference Co-Chair of PRIM&R’s SBER 2015 and 2017 conference, and as of 2016, joined the Board of Directors. Also, Elizabeth served as a member of the American Association for the Advancement of Science Committee on Scientific Freedom and Responsibility between 2012-2017.

In addition to her work on Internet research, Elizabeth is currently PI on her fourth National Science Foundation grant. In her recent study, she is looking at the ethical implications of service learning programs, and specifically, Engineers without Borders.

Elizabeth is the editor of one of the first anthologies of Internet research ethics (Readings in Virtual Research Ethics, 2004), and is author and/or co-author to numerous papers on research ethics and methods. Elizabeth is also primary co-author to the Association of Internet Researchers Ethics Guidelines for Internet Research. She holds BA degrees from Rutgers University, and her Master’s and PhD from the University of Wisconsin-Milwaukee.


Toby L. Schonfeld, PhD 

 Toby L. Schonfeld, PhD

Dr. Toby Schonfeld is Director of Prime Review Board, and independent Institutional Review Board located in Rockville, Maryland. Dr. Schonfeld is a national leader in research ethics, with over 70 publications and 50 presentations. She is responsible for the oversight, maintenance, and improvement of Prime’s Human Research Protection Program, including the IRB. Dr. Schonfeld has worked in ethics at both the US Department of Veterans Affairs and the US Environmental Protection Agency. She is a former faculty member of both Emory University and the University of Nebraska Medical Center, where she served as Vice-Chair of the Institutional Review Board. Dr. Schonfeld has reviewed grants for the US Department of Defense, has served on Data Safety Monitoring Committees, and was the ethicist on the National Cancer Institute’s Late Phase Emphasis Adult IRB.