Disease Specific Biobanks & Registries

Patient registries have been developed to identify individuals who would be interested in participating in research studies related to a specific disease or as a normal control, or in some cases to collect data that can be later studied to identify what might be causes of certain diseases, or what factors make them progress faster.

 UNMC associated Registries are listed below.  If you are a patient or family member interested in donating or participating in a registry contact the coordinator listed below.  For assistance in locating a registry not listed here contact the Research Subject Advocate's office at 402-559-6941 or email

 Registries & Biobanks  Contact Information
AIDS and AIDS Dementia Registry  Frances Van Meter, RN, APRN
 402-559-8163

Cancer (iCaRe2
iCaRe2  consolidates cancer specific registries with biospecimen banks to provide resources that foster and improve th efficiency of cancer-related research and facilitates collaborations among centers.

included in iCaRe2 

BCCR Breast Cancer Collaborative Registry 
GACCaRe Gastrointestinal & Abdominal
GUCaRe Genitourinary
Gynecologic
HNCaRe Head & Neck Cancer Registry
PCCR Pancreatic
TOCR Thoracic
TCCR Thyroid Tumor & Cancer Collaborative
Normal Controls (GPHID)

 

Michelle Desler, MS
402-559-8885

 

Normal Control Registry 
[Great Plains Health Informatics Database (GPHD)] 
Michelle Desler, MS
402-559-8885
Cystic Fibrosis Registry Jill Fliege, MS, APRN
402-559-9101 
The Nebraska Biobank 
Deidentified serum and DNA samples


Purnima Guda, PhD, Director EHR Data Core 
402-559-3845

Linda Wilkie, BS, VT, Operations Director, Nebraska Biobank
402-559-7649

Diabetes, Obesity, and Complications (DOCR) Registry  Megan Severson, BS 
402-559-5082 
Internal Medicine Biobanks Contact Person(s)
Nebraska Parkinson's Disease Registry Jill Krause
NE Department of Health and Human Services
402-471-8582
Paraffin Tissue Bank 
de-identified formalin fixed, paraffin embedded human tissues with a variety of neoplastic & non-neoplastic diseases paired with normal samples.
Geoffrey Talmon, MD, Director
Theresa Faure, MBA, PTB Project Manager
Melissa Hozapfel, BS, Tissue Sciences Facilities Supervisor
Salma Elhag, BSc, PTB Technologist 402-559-4123
RAIN 
Rheumatoid Arthritis Investigational Network
James O'Dell, MD, Director 
RAIN Database PI: Kaleb Michaud, PhD  402-559-7239
RAIN Database Coordinator:  Debra Bergman  402-559-8846  
Rheumatoid Arthritis, Osteoarthritis, Lupus and other Rheumatic Diseases Registry Kaleb Michaud, PhD
402-559-7239 
Tissue Procurement Shared Resource Julia Bridge, MD
402-559-7212